Mander2015

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Mander2015
BibType ARTICLE
Key Mander2015
Author(s) Clare Mander
Title An investigation of the delivery of health-related accessible information for adults with learning disabilities
Editor(s)
Tag(s) EMCA, Health communication, Empathy
Publisher
Year 2015
Language
City
Month
Journal Tizard Learning Disability Review
Volume 21
Number 1
Pages 15–23
URL Link
DOI 10.1108/TLDR-12-2014-0043
ISBN
Organization
Institution
School
Type
Edition
Series
Howpublished
Book title
Chapter

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Abstract

Purpose: People with learning disabilities often require support to fully understand information produced in an accessible format. What happens during the delivery of accessible information is largely unknown. This qualitative study examined the implementation stage of the accessible information process.

Design/methodology/approach: Two community-based learning disability nurses and two people with learning disabilities took part in a non-participant observational study of the naturally occurring conversations that took place during the delivery of health-related accessible information. Conversation analysis was used to explore both vocal and non-vocal behaviours.

Findings: Three clusters of episodes were identified: providing the accessible information, topic development, and consent. The use of accessible information appeared to provide a script for the delivery of the information; however, practical considerations of topic development and tailoring resources to the individual were evident. For sensitive conversations the use of shared experience and challenges in judging comprehension were apparent. Contradictory goals in the decision making process were highlighted, presenting potential ethical dilemmas.

Originality/value: The delivery of accessible information allowed for personalisation and appeared to support understanding; however, this was partly reliant on mutual empathy between the nurse and their client.

Notes