McArthur2024
McArthur2024 | |
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BibType | ARTICLE |
Key | McArthur2024 |
Author(s) | Amanda McArthur |
Title | When patients demur: Resisting diagnostic closure in US primary care |
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Tag(s) | EMCA, Conversation analysis, Diagnosis, Resistance, Patient engagement, Medical authority, Primary care, United States |
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Year | 2024 |
Language | English |
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Journal | Social Science & Medicine |
Volume | 344 |
Number | |
Pages | eid: 116619 |
URL | Link |
DOI | 10.1016/j.socscimed.2024.116619 |
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Abstract
Patients are more engaged in their healthcare than ever before, including in the process of diagnostic sensemaking. But in acute primary care encounters, the interactional flow of the visit is shaped by an orientation toward the physician as the authority over diagnostic reasoning. Once physicians close diagnostic inquiry and transition into counseling, their assessment – and the extent to which it converges with the patient's perspective – comes into full view. Yet this is precisely when patients have reduced occasions to speak up if they do have concerns, as the “train has left the station” both diagnostically and interactionally. Using conversation analysis and a dataset of 75 video recordings of acute primary care encounters in the US, this article examines how patients speak up in this constrained environment.
The concept of diagnosis demurral is proposed to describe how patients resist diagnostic closure by renewing the relevance of diagnostic inquiry, either in response to a diagnosis or at any point following the transition into counseling. Findings suggest that patients demur more frequently than prior studies on diagnosis resistance may have predicted, but they do so in ways that maintain deference to the physician's authority over matters of diagnosis: speaking up primarily outside the diagnostic moment, relying on actions in their own domain of expertise (e.g., their illness experience), and working to additionally soften the epistemic and interactional inappositeness of their demurral. This behavior sits at the nexus of two opposing forces: patients may be more engaged, but their participation is constrained by a continued legacy of medical authority over diagnosis, to which patients themselves continue to respond and reproduce.
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