Mander2015
| Mander2015 | |
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| BibType | ARTICLE |
| Key | Mander2015 |
| Author(s) | Clare Mander |
| Title | An investigation of the delivery of health-related accessible information for adults with learning disabilities |
| Editor(s) | |
| Tag(s) | EMCA, Health communication, Empathy |
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| Year | 2015 |
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| Journal | Tizard Learning Disability Review |
| Volume | 21 |
| Number | 1 |
| Pages | 15–23 |
| URL | Link |
| DOI | 10.1108/TLDR-12-2014-0043 |
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Abstract
Purpose: People with learning disabilities often require support to fully understand information produced in an accessible format. What happens during the delivery of accessible information is largely unknown. This qualitative study examined the implementation stage of the accessible information process.
Design/methodology/approach: Two community-based learning disability nurses and two people with learning disabilities took part in a non-participant observational study of the naturally occurring conversations that took place during the delivery of health-related accessible information. Conversation analysis was used to explore both vocal and non-vocal behaviours.
Findings: Three clusters of episodes were identified: providing the accessible information, topic development, and consent. The use of accessible information appeared to provide a script for the delivery of the information; however, practical considerations of topic development and tailoring resources to the individual were evident. For sensitive conversations the use of shared experience and challenges in judging comprehension were apparent. Contradictory goals in the decision making process were highlighted, presenting potential ethical dilemmas.
Originality/value: The delivery of accessible information allowed for personalisation and appeared to support understanding; however, this was partly reliant on mutual empathy between the nurse and their client.
Notes
