Difference between revisions of "Marlow2021"

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Marlow2021
BibType ARTICLE
Key Marlow2021
Author(s) Neil Marlow, Chloe Shaw, Kat Connabeer, Narendra Aladangady, Katie Gallagher, Narendra Aladangady
Title End-of-life decisions in neonatal care: a conversation analytical study
Editor(s)
Tag(s) EMCA, Neonatal ICU, End of life, Medical
Publisher
Year 2021
Language English
City
Month
Journal Archives of Disease in Childhood - Fetal and Neonatal Edition
Volume 106
Number
Pages 184–188
URL Link
DOI 10.1136/archdischild-2020-319544
ISBN
Organization
Institution
School
Type
Edition
Series
Howpublished
Book title
Chapter

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Abstract

Objective To understand the dynamics of conversations between neonatologists and parents concerning limitation of life-sustaining treatments.

Design Formal conversations were recorded, transcribed and analysed according to the conventions and methods of conversation analysis.

Setting Two tertiary neonatal intensive care units.

Participants Consultant neonatal specialists and families.

Main outcome measures We used conversation analysis and developed an inductive coding scheme for conversations based on the introduction of limiting life-sustaining treatments and on the parental responses.

Results From recordings with 51 families, we identified 27 conversations about limiting life support with 20 families and 14 doctors. Neonatologists adopted three broad strategies: (1) ‘recommendations’, in which one course of action is presented and explicitly endorsed as the best course of action, (2) a ‘single-option choice’ format (conditional: referring to a choice that should be made, but without specifying or listing options), and (3) options (where the doctor explicitly refers to or lists options). Our conversation analysis-informed coding scheme was based on the opportunities available for parents to ask questions and assert their preference with minimal interactional constraint or pressure for a certain type of response. Response scores for parents presented with conditional formats (n=15, median 5.0) and options (n=10, median 5.0) were significantly higher than for those parents presented with ‘recommendations’ (n=16, median 3.75; p=0.002) and parents were more likely to express preferences (p=0.005).

Conclusion Encouraging different approaches to conversations about limitation of life-supporting treatment may lead to better parent engagement and less misalignment between the conversational partners.

Notes